Knowledge and interest in genetic testing for breast cancer risk in western Washington women participating in a RCT of counseling for breast cancer risk
| . | Main study n = 307 . | Lesbian/Bisexual n = 87 . | African American n = 31 . | Ashkenazi Jewish n = 113 . |
|---|---|---|---|---|
| Read/heard about genetic testing for cancer risk (%)a | 70.4 | 75.0 | 90.3 | 72.7 |
| (almost nothing/relatively little) | ||||
| Candidacy for testing (%)a | 86.0 | 77.4 | 83.9 | 70.1 |
| (probably/definitely yes) | ||||
| Interest in testing (%)a | 89.9 | 88.1 | 87.1 | 82.9 |
| (probably/definitely yes) | ||||
| Interest if self pay (%)a | 72.0 | 64.3 | 51.6 | 68.4 |
| (probably/definitely yes) | ||||
| Amount would pay (%)a | ||||
| ≤$100 | 33.1 | 41.0 | 54.9 | 21.3 |
| $100–$200 | 50.3 | 43.4 | 32.2 | 52.1 |
| $500 | 9.5 | 8.4 | 3.2 | 7.1 |
| ≥$1,000 | 2.9 | 2.4 | 0 | 7.7 |
| Anticipated actions if positive | ||||
| Increase breast self-exam? | 95.8 | 92.7 | 100.0 | 97.5 |
| (% probably/definitely yes) | ||||
| Increase clinician exam? | 86.3 | 85.6 | 100.0 | 86.4 |
| (% probably/definitely yes) | ||||
| Increase mammogram frequency? | 72.9 | 79.5 | 93.6 | 69.5 |
| (probably/definitely yes) | ||||
| Consider prophylactic surgery? | 88.6 | 89.1 | 93.6 | 82.0 |
| (% probably/definitely NOT) | ||||
| Affect childbearing decisions? | 88.1 | 85.4 | 77.4 | 86.9 |
| (% probably/definitely NOT) | ||||
| Want test results even if options don’t change? | 81.1 | 84.4 | 93.5 | 78.7 |
| (% probably/definitely yes) | ||||
| Beliefs about genetic testing (mean, SD) | ||||
| Fear of stigma | 3.0 (1.1) | 3.0 (1.1) | 2.5 (1.0) | 3.0 (1.1) |
| Information accessa | 4.0 (1.3) | 4.7 (1.2) | 5.1 (1.0) | 4.1 (1.2) |
| Information flowa | 2.1 (0.9) | 2.0 (0.9) | 2.6 (1.2) | 2.0 (1.0) |
| . | Main study n = 307 . | Lesbian/Bisexual n = 87 . | African American n = 31 . | Ashkenazi Jewish n = 113 . |
|---|---|---|---|---|
| Read/heard about genetic testing for cancer risk (%)a | 70.4 | 75.0 | 90.3 | 72.7 |
| (almost nothing/relatively little) | ||||
| Candidacy for testing (%)a | 86.0 | 77.4 | 83.9 | 70.1 |
| (probably/definitely yes) | ||||
| Interest in testing (%)a | 89.9 | 88.1 | 87.1 | 82.9 |
| (probably/definitely yes) | ||||
| Interest if self pay (%)a | 72.0 | 64.3 | 51.6 | 68.4 |
| (probably/definitely yes) | ||||
| Amount would pay (%)a | ||||
| ≤$100 | 33.1 | 41.0 | 54.9 | 21.3 |
| $100–$200 | 50.3 | 43.4 | 32.2 | 52.1 |
| $500 | 9.5 | 8.4 | 3.2 | 7.1 |
| ≥$1,000 | 2.9 | 2.4 | 0 | 7.7 |
| Anticipated actions if positive | ||||
| Increase breast self-exam? | 95.8 | 92.7 | 100.0 | 97.5 |
| (% probably/definitely yes) | ||||
| Increase clinician exam? | 86.3 | 85.6 | 100.0 | 86.4 |
| (% probably/definitely yes) | ||||
| Increase mammogram frequency? | 72.9 | 79.5 | 93.6 | 69.5 |
| (probably/definitely yes) | ||||
| Consider prophylactic surgery? | 88.6 | 89.1 | 93.6 | 82.0 |
| (% probably/definitely NOT) | ||||
| Affect childbearing decisions? | 88.1 | 85.4 | 77.4 | 86.9 |
| (% probably/definitely NOT) | ||||
| Want test results even if options don’t change? | 81.1 | 84.4 | 93.5 | 78.7 |
| (% probably/definitely yes) | ||||
| Beliefs about genetic testing (mean, SD) | ||||
| Fear of stigma | 3.0 (1.1) | 3.0 (1.1) | 2.5 (1.0) | 3.0 (1.1) |
| Information accessa | 4.0 (1.3) | 4.7 (1.2) | 5.1 (1.0) | 4.1 (1.2) |
| Information flowa | 2.1 (0.9) | 2.0 (0.9) | 2.6 (1.2) | 2.0 (1.0) |
Significantly different across the four study groups, P < 0.01.