Advances in medicine and public health require diverse population participation in biospecimen donation as well as clinical trials where biospecimen collection is included. This is increasingly related to improving our understanding of the factors related to cancer and other disease outcomes and etiology. Barriers to biospecimen and biobank donation for underserved communities are poorly understood especially for minority and rural communities who experience delays in translation of research results, lower participation in clinical trials and delays in technology transfer.
On Maryland's rural Eastern Shore, formative research and evaluation of educational programs and materials on biospecimen donation was undertaken. Supported by an NCI grant, this presentation will describe research results, biospecimen educational programs targeting the public and health professionals and donation barriers in a rural and diverse community on Maryland's Eastern Shore. Recommendations for planned quantitative studies as well as educational modules for community physicians and nurses will be discussed.
Citation Format: Claudia R. Baquet. Minority and rural population views and consent preferences for biospecimen and biobank donation. [abstract]. In: Proceedings of the Fifth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2012 Oct 27-30; San Diego, CA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2012;21(10 Suppl):Abstract nr ED03-01.