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With the increasing number of cancer advocates—cancer survivors, family members and other patient advocates—who identify themselves as research advocates, how is their role changing in the clinical research process and oversight of research ethics? As advocates become more involved in the research process, does their commitment to and hope for advancing cancer research undermine their ability to safeguard the rights and advocate for the needs of individuals and groups who participate in clinical trials? Who do advocates represent in their work and is it possible to advocate for research as well as for individuals and/or groups who participate in this research? This presentation will examine models of appropriate and effective partnerships between scientists and advocates and discuss not only the ethics of research that advocates pledge to uphold, but also the ethical issues faced by advocates as they engage in furthering and supporting cancer research.

[Proc Amer Assoc Cancer Res, Volume 46, 2005]